Today’s the day!

My Lover is in the Air as I compose this post. I’ll see him in like eleven hours and I couldn’t possibly be more excited. It’s been a rough nine weeks without him, but my animals and human friends have been really awesome and supportive and I’m grateful beyond words for them. 

I’m not sure what else I can tell you aside from the fact that I’m glowing and profoundly relieved to have my Baby coming home. I’ve tried my best to be strong and keep myself composed but it has been a difficult summer. I’m still a bit stressed about the dead season on the beach coming soon. Got to find myself something to fill in the gaps with.

Not much else is happening. I had an excellent little birthday party at the pub with ten friends so that was good fun. Got some Iron Maiden socks and two Maiden shirts 🙂

I’ve killed damn near the whole summer. A few more hours isn’t shit 😉

Love-

Thom

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Muh Summer

It’s right around the corner. The humidity is spiking in grand Florida fashion as I prepare myself to go see Iron Maiden in June. That along with turning thirty-five are the main points of interest so far. 

On the home front I’m bracing myself for two lonely months without my Lover Man. He got a lead in a Play in Alaska. I would have liked to join him but  I simply couldn’t scrape together the funds. Also, I feel like it’ll be best for our animals having one of us here.

Rheumatologically the battle continues unabated. In spite of a year of various meds my Vectra DA score (Disease Activity) more than doubled since last year when  I was first diagnosed with RA. I’m trying to remind myself that this number doesn’t reflect the increase in my methotrexate which I’m sure is helping. 

Sometimes I’ll have a few days straight of my joints being relatively calm and painless. It’s easy to underestimate how capricious and erratic my body can be. I’ll start feeling strong and cocky but the swelling always returns and slaps me back into my place. Still, overall I think I’m showing some recent improvement and am optimistic that incorporating a gluten and sugar free diet will give me even more edge. My first diet attempt crashed and burned but  I plan to give it another go while my Man is in AK.

So yeah, the summer is pretty wide open. I am sure as shit not just being a house ape the whole damn time. I’m gonna miss the living fuck out of Him 😦

That’s about all for now. I find this is a useful protip to give oneself from time to time 😉

Be well-

Thom

Spring is in the air

Yup, Florida’s ever so brief flirting with cool temperatures is nearly behind us giving way to spring. This will be my second spring break working on Clearwater Beach and I am EXCITED this year. I plan to make some money. The fact that my employer just gave me a killer raise plays into this aspiration well. 

Health wise I’m doing pretty well. My foot is all healed up and my RA meds seem to be doing the job. I’m not having intense pain when I do flare and it’s certainly less frequent with my taking the Methotrexate and Humira. I don’t use steroids much these days and I rarely use my heavy duty ibuprofen.

Anyhow, things are pretty good right now. Work goes well, I’ve managed to catch up with a couple friends recently and I’m just trying to enjoy the time I do get to myself. Playing into that, my listening agenda lately has consisted of The Devil’s Blood, Beherit, Funeral Mist. Samael, Jex Thoth, Jess and the Ancient Ones, Fallen Christ and Sadistic Intent. I’ve also been occasionally working in some moody stuff like a bit of The Golden Palominos and how could I forget that lovely band called Purson? Magnificent band, sultry, trippy and deeply insightful. Just the way I like my Psychedelica.

I don’t do nearly as much reading these days as I would like and this is something that I’m trying to improve my record on. I’m ADHD as all get out. I live to read if it interests me but I have a hard time staying on task and my attention wanders horribly. Currently I’m reading a book about Goddess worship throughout human history as well as the occasional Crowley book. Even if all I read is a chapter now and then I try to keep going.

As ever, with all things. This spring break should be a bit better. A lot of the construction on the beach is donezo. I know what’s wrong with my joints unlike last spring break. The meds seem to be working well and I’m feeling alright about it. As long as I can manage the fatigue I’ll be alright. I just finished eight days straight the day before yesterday. Can’t wait to get that check. 

In the meantime, based on a few suggestions from friends I’m going to give CBD oil a try for my arthritis pain. It got some rave reviews from people I know that had some pretty serious pain to manage. I’m pretty sure Florida will give me a medical marijuana card but God knows how long that’ll take. CBD is already legal in this state and I think it’s worth a shot.

So yes, today finds me facing the near future with optimism and hope. I just have to be careful and listen to my body. I can only do what I can do. 

That goes for you as well. 

93

-Thom

Precarious Existence

There’s something to be said for humans and their ability to withstand a constant barrage of soul crushing bullshit. Some folks are like well trained dogs, or perhaps horses. So stubbornly proud of how much they can endure the feeling of the cruel bit in their quivering mouths. I try to not be such a person when possible. 

Granted, I’ve calmed down quite a bit since I was a rage junkie teenager /young adult. But I still have a really hard time with impulse and mood control. Sometimes my brain feels like a car with the gas pedal and the brake being slammed at the same time. The laws of physical science dictate that one or both will eventually give out. That said, I’m a lot better than I used to be. I have SOME degree of control over my emotions and moods. There was a long time where I had zero.and it was not pretty. 

I realize that I have a responsibility to keep my head together and stay out of hospitals or legal trouble. I’m getting better about articulating the things that are ripping through my mind day to day. I don’t go manic. Risperdal prevents that pretty well. But in the last year or two depression and anxiety have been much bigger problems for me than they have been in the past.

I take Wellbutrin for this purpose and it helps. I’ve come to accept the fact that I’m going to have to deal with some breakthrough craziness in the name of not being completely dead inside from being zonked the fuck out on psych drugs. 

I get upset a lot, almost completely at random. I’ve gotten better at identifying my bad states and taking my vistaril (antihistamine used to treat anxiety and panic) when I start freaking out. Still, it’s been rough the last month or so. Being temporarily unemployed didn’t help my mental state any.  On a positive note, its been great to be back at my job. I missed my people 🙂

I don’t know, sometimes it feels like all it takes is a single word or a random breeze to put me in a state of profound sadness. I don’t know if anyone realizes the herculean effort it takes for me to maintain the veneer of relative composure. Some days I just go to pieces regardless. It all depends on a plethora of factors and variables.

I don’t get to see my friends much lately and it’s really been eating at me. Spending entirely too much time in my own head. I don’t have a car and our schedules never line up anymore. I just worry that they think I don’t care. It’s not that at all. I just feel like I’m spread out too thin trying to do too much. 

Still, I’m grateful for the life I have, batshit as I may be. I have a job. I have relative freedom and a Lover who makes all the bullshit worth it. Its so easy to lose sight of the things that really matter. Mental illness has a way of giving one a bit of the old tunnel vision.

This has been one of my less focused posts on this blog. But whatever. I’m thinking this is a decent enough place to wrap it up with a quick run down.

I’m happy to be working again.

I love my Fiancee and my Dog and two Cats.

I’m doing my best.

May it be enough….

-Thom

Muh composure 

Is honestly pretty strong lately.  I had a period where I was kind of getting sucked into the old blacker than death pit of despair.  It’s not as easy to do as it once was,  but I stay vigilant nonetheless because I fully realize what I’m screwing with. I am really trying to be good to myself here and not let it get away from me again.  

Mentally,  I’m in a pretty excellent place. One of optimism and hope. I’m staying positive and taking decent care of myself as far as staying up on all my meds and eating right. Haven’t eliminated gluten but have significantly cut back on it and I’m pretty sure it’s the reason my belly is tightening up. I do need to start using the elliptical again, it’s pretty much the perfect workout for me. Soon, honest.

Still having a fair amount of swollen joints so my Doctor got me started with Humira injections yesterday.  It’s pretty easy to do and doesn’t hurt much at all,  at least so far. My Doctor has said if the DMARD meds do their thing I should be able to cut out ibuprofen which can spike my blood pressure.  I didn’t really feel any different yesterday after the shot in my thigh. Woke up feeling rather strange the morning after but not particularly sick. Just really weird like.

So yeah,  things are sort of in a state of flux, but for the best methinks.  I’m grateful to be treating my RA with some proper meds and things have been lovely as ever on the home front.  I’m chilling on the couch with my bestie Ms. Roxy at the moment,  as I so frequently do. 

The only thing I find myself worried about now is getting sick. I’ve been warned that if I’m sick on Humira day I should skip it.  Honestly the potential effects for this one are pretty scary but I decided to give it a try because my Doctor said it would be cheaper than methotrexate and most likely have better results.  At least after everything processes with the patient assistance program he signed me up for. If not for this I doubt we would have considered a biologic as they are hideously expensive generally.  As far as the getting sick thing, allow me to clarify. I’m not being a hypochondriac or looking for something to go wrong, I’m just being realistic about the fact of being on two Immunosuppressives.  Aside from paranoid handwashing I’m just going to start packing sani-gel and try to avoid the bus. I see a lot of cycling in my future. Could be a good thing though, in fact I’m sure of it. 
On that note, I feel compelled to mention that my better half and my family are being really awesome and supportive about this whole business.

That’s why it kind of pisses me off when I hear people go on their rants about big pharma or their conspiracy theories about medical science.  I’m not saying that there isn’t profiteering and shit like that going on, not by any stretch. It’s just that there are a lot of good health professionals out there who bust their asses to help their patients. I’m grateful as hell to have an excellent care team. I feel it’s a pretty dick move when people try to tell folks with chronic illnesses that they know better than our physicians.  I grow  tired of people and their belief that there is some organized effort by big pharma to slaughter the population. I have three Physicians who look out for my various health issues and I’m grateful for each of them.

Proper diet, exercise,  probiotics, these are great things that I include as part of my routine.  But early aggressive treatment is how you prevent irreversible joint damage.  I have seen photos of advanced Rheumatoid Arthritis.  I do not feel like taking my chances. I have a dear friend who is trying to convince me that medical science is out to murder me and that a person at a health food store can cure my Rheumatoid Arthritis and Bipolar Disorder with the right combination of herbs and supplements.  I’m not buying it,  to be perfectly frank. I know of a person who was a good friend of my sister who’s acupuncturist convinced him to stop taking his psych drugs.  Two weeks later he blew his brains out with a shotgun. I think I’ll stay on the meds.
Aside from that,  I’m also thoroughly sickened by the election.  Both parties giving me shit for voting Libertarian and assuming that they own my vote. They can both kiss my ass. I don’t want more of the same. I will vote however I damn well please and you can all live with it.  

So yeah,  that’s about where I’m at. I hope you enjoyed my hopelessly disjointed thoughts. 

Cheers.

Oddly enough 

Feeling better and worse. I’m not upset or anxious so that’s a plus,  but Shannon appears to have given me his cold so I’m a bit run down. It’s looking like it’s not a big deal but I’ll keep an eye on it given the fact of being on Arava. 

But yeah, I was in a rather bad state yesterday. I got sent home from work after two hours so didn’t make jack for money. I was borderline panic-stricken for a bit,  though I eventually chilled the hell out. As the day progressed it became apparent that I was developing congestion and chills so I tried to lay low most of the day there on. 

Joint pain is only a slight bother today, which is nice after my wrists swelling for a few days.  Everything I’ve been told says Arava takes a decent amount of time (month to six weeks) to build up a blood level and start working.  I’ve been on it just nine days so I don’t expect it’s doing much yet. 

Anyhow,  tomorrow is my big look for work day. I have a couple of places I’m pretty optimistic about and a decent enough plan on guess.  I’m just hoping to stay on top of this creeping fatigue I’ve had lately. I’m choking on Post-nasal drip but at least I’m in a good mood.  Small victories and all.

The screws tighten 

I must confess that my stress is getting the best of me right now.  I came back from Alaska to find my schedule at work absolutely slashed.  I’m using this week to update my resume and look around. I’m not sure anything else on the beach is a safe bet. Tourist season is currently flatlining and I’m scrambling like mad to pay my bills on time. I’m already feeling pretty weak from the meds I take and the timing could not be worse. 

I’m trying to stay positive and proactive about this but lately all I want to do is hide out in bed. I am fully aware that this does nothing for me but it sure does look alluring right now.  

It only makes sense.  I had such a great summer that the bubble was bound to pop sooner or later.  Le sigh of exaggerated discontent. I used to be able to find work so easily. Now it takes the right alignment of the stars and maybe a blood sacrifice to so much as get a single response.  
Press on, I must. But I feel like fucking garbage and it just won’t stop.