Back in ALASKA!!!!😍

As the title implies, our trip finally happened. Not in it’s original form nor under the preferred circumstances but….Shannon is finally healing up and well enough to travel. So first a week in Alaska. Firstly for a Memorial ceremony for his Mother. Secondly so he can meet with lawyers and handle his busines. After that we’re spending a week in Vegas on the way back to Tampa. We have both had a rough year so far and decided that the timing was right for a little vacation. But more on that later.

We had the Memorial with family at Murphy Dome USAF Radar Station( pictured here)

at the top of a mountain.

I thought it a perfect time for my hooded dress and longsleeve shirt (because mosquitoes are INSANE up here) but only one other person wore black.

We shared stories and memories plenty. Shannon’s Sister and her Husband brought Shari a few last drinks that we poured of diet pepsi and wine(and we had a bit of wine too) and we scattered some of her ashes up there. Those who wished to put on a glove and tossed a handful of Shari’s asges as we said our goodbyes. As for the rest of the ashes, Shannon and I are taking them to Vegas (which she loved). The highlight was as well were getting ready to leave a double rainbow formed 🙂

Aside from that, Shannon has been busy with figuring things out with the lawyer and I’ve just been kicking back and relaxing. Enjoying the Scenery. Here is the view from where I’m sitting:

So we’re here until Saturday and then we fly to Vegas by way of Seattle. Gonna see Primus, Carrot Top and some JOUSTING among many other things like relax by the pool 😍

I’m super excited. Aside from all of that,I’ve been in contact with a gender therapist who has been really helpful. I hope to be on hormones by the end of the year. I’ve been infinitely more happy and content since I began transitioning. I feel so much more comfortable in my own skin it’s amazing.

So that’s about all I have for now. Smooches!!!

Love–

Lily Jane(and Wodos)💜

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When all things are considered…

I’m strangely content of late. It’s actually rather nice. I’m keeping up with my obligations and looking forward to my vacation in Alaska  next week. As for my health,  it’s pretty solid. I’m seeming to get some ADHD coverage from the Wellbutrin I was prescribed for depression,  so that’s a plus I’d say. I’m not sure what my current status is diagnosis-wise. If it is Rheumatoid Arthritis it’s the Seronegative type, as the blood work doesn’t really support this as SED rate, Rheumatoid Factor and C-reactive Protein are in the  normal range . I have to see a Dermatologist to get a biopsy on one of my nodules. If there are palisading lymphocytes then they are rheumatoid nodules, according to the Rheumatologist. At any rate,  I’m not particularly swollen or inflamed right now,  at least not badly. 

    It’s very strange the way my pain and fatigue wax and wane. Most days I feel relatively strong and capable.  But some days I flare up and come home feeling like I’ve been beaten by a golf club. As for fatigue,  I’m a fairly crazy coffee drinker, but when it hits, no amount of caffeine will move me. I had a day or two that I slept way too much and pretty much felt drunk and disoriented no matter what I did to kick myself into gear. My fatigue and stiffness have mostly been sparing me lately, for which I am grateful.  When the fatigue does hit nothing can touch it. 

    So if not RA, then what? My Mom came with me to my last appointment with the Rheumatologist.  At one point she looked confused and said  ‘So does he have RA or not?’. He said, ‘I’d bet my car on it but I’m not ready to bet my house.’. Which I presume is doctor-speak for I dunno. We shall see I guess.  My flares are erratic and won’t bother me for a decent amount of time in between.  I can’t really figure out what aggravates it. I had lots of swollen joints when I first saw my current doctor. That plus nodules which I still have on many knuckles. Also the xrays revealed some erosion.  The prednisone helped a lot but steroids are not for long term use. Anyhow,  the crucial thing is I’m alright and not feeling sick or sore right now.  

    On the Metal front life is good. Last show was a bit of a mixed bag.  Great bands but too much Metalcore filler.  Got to see Brazilian Death Metal Juggernaut Krisiun as well as Nile, Cannibal Corpse,  Revocation and SUFFOCATION SHOULD HAVE BEEN THERE DAMNIT! I GOT ROBBED DAMNIT! Oh well.  It’s just that they are the primary reason I went to that show. I was sorely disappointed.  Seeing Master in a month and DRI in December.  Hoping to get my copy of Harald Oimoen’s book signed! Metal Nerd for Life.  Aside from that,  just doing my thing. Finally decided to quit shaving my head too. Ha!

    My heart

    Is about to fly to Alaska via Seattle. I just got back from driving him to the airport. I started noticing creeping feelings of…well… intense attachment as we moved through the airport. I kept it cool when it came time to part. I held on to him for what felt like forever. One passionate kiss and we went our separate ways and I tried not to cry. At least until I was by myself on the elevator. Everyone on the way there could probably read my face but whatevers.

    So here it is. Two weeks without my darling. It’s a good thing I’ll be keeping busy. I snapped this before we left for the airport. I’m so fortunate to have found a person whose geekdom matches my own. Oh hell. I’m simply ill with emotion. It needs to be the day after my birthday so I can hold him tight and ignore all else.

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