Spring is in the air

Yup, Florida’s ever so brief flirting with cool temperatures is nearly behind us giving way to spring. This will be my second spring break working on Clearwater Beach and I am EXCITED this year. I plan to make some money. The fact that my employer just gave me a killer raise plays into this aspiration well. 

Health wise I’m doing pretty well. My foot is all healed up and my RA meds seem to be doing the job. I’m not having intense pain when I do flare and it’s certainly less frequent with my taking the Methotrexate and Humira. I don’t use steroids much these days and I rarely use my heavy duty ibuprofen.

Anyhow, things are pretty good right now. Work goes well, I’ve managed to catch up with a couple friends recently and I’m just trying to enjoy the time I do get to myself. Playing into that, my listening agenda lately has consisted of The Devil’s Blood, Beherit, Funeral Mist. Samael, Jex Thoth, Jess and the Ancient Ones, Fallen Christ and Sadistic Intent. I’ve also been occasionally working in some moody stuff like a bit of The Golden Palominos and how could I forget that lovely band called Purson? Magnificent band, sultry, trippy and deeply insightful. Just the way I like my Psychedelica.

I don’t do nearly as much reading these days as I would like and this is something that I’m trying to improve my record on. I’m ADHD as all get out. I live to read if it interests me but I have a hard time staying on task and my attention wanders horribly. Currently I’m reading a book about Goddess worship throughout human history as well as the occasional Crowley book. Even if all I read is a chapter now and then I try to keep going.

As ever, with all things. This spring break should be a bit better. A lot of the construction on the beach is donezo. I know what’s wrong with my joints unlike last spring break. The meds seem to be working well and I’m feeling alright about it. As long as I can manage the fatigue I’ll be alright. I just finished eight days straight the day before yesterday. Can’t wait to get that check. 

In the meantime, based on a few suggestions from friends I’m going to give CBD oil a try for my arthritis pain. It got some rave reviews from people I know that had some pretty serious pain to manage. I’m pretty sure Florida will give me a medical marijuana card but God knows how long that’ll take. CBD is already legal in this state and I think it’s worth a shot.

So yes, today finds me facing the near future with optimism and hope. I just have to be careful and listen to my body. I can only do what I can do. 

That goes for you as well. 

93

-Thom

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Berserk Jacket of Doom

I’m done messing with it. I used my post Hospital time (in spite of the percocet making me lazy)to get my shit together and do the last of the sewing.   Stay tuned for the beginnings of a Strictly Thrash Vest. Until then, here’s muh pride and joy :

Bands: Absu, Jex Thoth,  The Devil’s Blood, Purson, Mayhem, King Diamond, Abyssic Hate, Immolation, Pungent Stench, Incantation, Mortuary Drape, Blood Ceremony, Electric Wizard, Samael, Burzum, At The Gates, Funeral Mist, Misfits, Morbid Angel, Averse Sefira, Sadistic Intent, Bathory, Angelcorpse, Beherit, Black Sabbath,  Arghoslent.  

Cheers y’all! 

-Thom

The Humiradventure Continues….

I’m still figuring it out as I go. Such is the way with most things.  I’ve received a denial letter, but the specialty pharmacy has already filed an appeal on my behalf.  I’m three injections in and feeling pretty good day to day.  I’ve only taken pain relievers ONCE in the last two weeks.  I’ve noticed a fairly sharp drop in my morning stiffness and have been relatively comfortable of late. I likey the Humira.  

Granted,  some of it could be the Arava starting to do it’s job.  Whatever it is,  I’ll take it. I’ve had a steady decline in the swelling of my joints and my energy level has been much better for the last few weeks.  I can see why so many Rheumatologists extol the virtues of DMARD combination therapy.  The shit freaking works.  I’ve been in much better shape on a daily basis and I’ve been able to get there without ibuprofen OR prednisone.  

So yeah,  that’s about where I’m at.  As confusing as things have been with navigating this strange world of specialty pharmacies,  I’ve been fortunate to have a Nurse from AbbVie in my corner advising me.  She called me yesterday and I gave her the scoop on the latest happenings. She told me to keep up what I’m doing and then she said ‘If your insurance company ends up bringing down the hammer give me a call and we can get the paperwork for another option started’. It’s a very crude paraphrase but the point is that AbbVie has some kind of foundation that may be able to help me. We shall see,  but I’m pretty optimistic about things. 

I must admit I feel pretty fortunate.  I just said to my Boyfriend on the other couch “The best thing about the meds is that I’m not flaring up at work. I can just do my job.”.I’m trying to work smarter lately and reduce the stress in my life.  Getting away from Facebook was a good move. It wasn’t any particular factor aside from it just being too much bullshit for my mind to effectively process.  I don’t check my blog at work. I’ll see it if I get a like or a new subscriber and that’s the extent of my wordpress play at work. My battery lasts a lot longer these days as well.  

All things analyzed, I’m pretty content with how my existence is currently rolling along.  I’m confident that my jacket project will chug along with my hands being in better order. I got some killer patches for it but I’ve barely etched the surface of it’s potential.  Black and white.  Occult Metal and Psychedelic Rock. Thelema. Spikes. It is going to be an outpouring of my feral soul. More on that as it develops. 

Anyhow,  life is capricious and strange as ever. Ride the waves we must!!!

93

Sacri-licious

I know it’s not a real word. Stop oppressing me. I’ve been enjoying myself in the kitchen lately and don’t mind bragging a bit.  Yes,  I am a fan of my own cooking. I’m a big believer in comfort food. This morning I woke up with swollen joints in a decent amount of pain.  Took some analgesics and distracted myself from all that noise by making tacos at nine in the morning because I can. It made me feel better,  though that ache is still there. 

I’ve been on Arava for three weeks and am still not noticing any change. I just hope it doesn’t make my blasted hair fall out like it’s known to do. I was thinking the new med was starting to work until yesterday.  I had several pain free days without any NSAIDS and thought I had hit a clearing. Then I started flaring again.  My Rheumatologist has instructed me to be sparing with my bottle of prednisone so I’m not taking any more before I see him next week.  If I still have a lot of swelling when I see him he may add another med, hard to say. I’m back on a steady dose of Tylenol and Motrin for the time being.  

Mentally I’m much calmer today than I have been since returning to Florida. I had an interview for a job by the mall today which I freaking nailed. The beach is a dead scene lately and I had to go where the money is. I can’t live off two days a week,  much as I like my beach job. So, yeah. A bit more relaxed now that I’ve found a new job.  I’m usually pretty good at staying on top of my brain cooties, but the financial anxiety had been wearing hard on me.  

I’m doing fairly well otherwise.  Sometimes I can’t believe how lucky I am.  I wouldn’t have thought of pursuing this particular job if a work friend hadn’t told me to come check the place out.  She also put in a word for me,  I think. I left that place today with a satisfied smirk on my face and a spring in my step. 

It’s nice that some people still remember and practice karma. I do my best to put out mostly positive energy and be a decent person.  My great struggle in this life is not letting experience make me inexorably cynical. I can’t remember who said this but one quote sticks out in my mind: Snark is the modern disease. In so many walks of life it seems like nothing more than a vast sea of smiling back stabbers with no thought process outside the context of petty one-upmanship. At the risk of sounding like a hippie, I’m not letting these types lay waste to my true nature. 

Perhaps I should clarify,  I’m not referring to the concept of a higher self or whatever. I’m talking about the true incontrovertible raw essence of self. The will, if you like. Crowley tells us that every man and woman is a star with a unique and distinctive orbit. The Law of Liberty applies to all,  or it applies to none at all.  Some people absolutely crack their minds trying to wrap them around such a broad and sweeping ethos of tolerance and respect for others. Thou hast no right but to do thy will, save for if such will inhibits the liberty of another.  Thelema is truly the embodiment of the global citizenship notion which has become so popular in recent times. 

Now I pause and rub my knuckles in a contemplative state. As I glance at the time I realize that I’m due for nighttime meds. I’ll try to keep the rest of this post succinct. I’m okay. I was in an icky state for a few weeks but I made it through for now. I’m highly grateful for the quality time with my Boyfriend and our animals that I’ve been awash in of late. These are the things that keep me whole and pure. Which brings me back to the essence of self.  Beyond all the layers of experience,  the infrastructure of interaction with others, and how we see ourselves is the raw entirety of one’s being.  Not physical attributes, nor any shade or filter of presentation may obstruct the indomitable gleam of (for lack of better terminology) the inner light. It is the light which permeates and moves through all objects and things living or not,  that which the ancients rightly viewed as the active living will of God.  

Know thyself, and the rest will follow. I’m not the smartest, best looking or most successful person out there. I’m just a guy who knows who the hell I am. I refuse to let this world dull my glow. 

I’m not really certain what the purpose of this post was, but I’m running with it.

 See if I do not. 

93 

Priorities

I have a few, if not a great many. I want to explore the planet and stand in the sun with a will and be dangerous. The Khalil Gibran interpolation aside, I want to challenge myself. I know I’m not an idiot, but I am kind of an underachiever in many ways.

I try to cut myself some slack. This is a delicate balance in itself. I mean, I’m not incarcerated or held against my will in a hospital having my brain completely twisted with drugs, so that’s a plus I suppose. Honestly, things are better now than I thought they would ever get. For several years I was slowly recovering from my second nervous breakdown. Both came close to totally ruining my life.

I was on a crazy check for almost five years. The fact that I’m supporting myself and in a stable and loving relationship is still somewhat astonishing to me. I’m not out of the woods, but I made it through several years of total fucking darkness and despair.

It’s amazing to be with a guy who builds me up and inspires me like he does. He makes me laugh like no one ever has or ever will again. Or something. I’m being obnoxious and glowing so expect a few bottles of pure nauseating sap from the chief harbinger.

But on to the point (which I do have):

What is the next step?

Marriage for one. A trip to Alaska this fall is officially signed in blood and sealed. But then? My man is trying to get into law school and I’m not sure where that will lead us geographically. I need to develop some kind of lucrative skill here so I can live reasonably well, but what?

I have to accept the fact that I have certain limitations. I mean, I do fairly well for being a bipolar kid on extended release Ritalin with arthritis and tendonitis. However, I’m getting older and I fully understand that I’m not an indestructible machine. My first brush with sciatica was like tasting my own mortality for the first time. It certainly brought me down a peg being barely able to walk.

I think a lot about what I might be good at. I’m neurotic and detail oriented so I’ve always thought something technical and analytical would be for the best. But I have to start thinking a bit harder about this stuff. Life is happening and all.

I also think I’m approaching the point where I’d like my spiritual pursuits to go beyond the realm of solitary practice. Maybe one of the Thelemic societies or a Gardnerian Coven (I do not believe that the two are exclusive of one another). I think it is time to turn will into action.

May it be so for you as well.

93

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Slogging away

My life is pretty chaotic at present. My home/romantic life is wonderful but other facets of my life are to put it simply falling apart. I can’t find employment to save my life. I’ve had a kajillion interviews and zero callbacks. The consistent theme lately seems to be rejection.  To be perfectly honest, it isn’t a huge surprise to me.

My resume is pretty weak, all things considered. I’ve had two severe mental collapses in my life. Both times my working life seriously regressed.  All I have for stable work experience in the last few years is shitty low end crap restaurant jobs that ran me ragged.

That’s why I’m pushing forward with the Vincent House thing. Because I’ve never really gotten any kind of help for being mentally ill. I feel like I would be severely stupid to not further investigate the possibility.  As far as that goes, I’m doing what I have to do. I have to first open a case with Florida vocational rehabilitation and designate Vincent House as my provider.

I’ve been through the place and talked to people there. I think these people can really help me get on the right track and I look forward to making it happen.

It’s been ten years since my first nervous breakdown that resulted in my type one bipolar disorder diagnosis. I have tried and tried harder than I thought was humanly possible to make it on my own. I simply can’t make a decent living with what’s available to me. I can’t handle the heat of kitchens any more with all the meds that I take daily.

I’m just not built for straight up warfare type jobs anymore. I need a new skill or something.  I had my intake/orientation appointment with vocational rehabilitation a couple days ago. Tuesday I have my meeting with the counselor to talk about my history and determine my eligibility I suppose.

Here’s hoping. I feel like this is my best shot and I’m taking it. Say a little invocation for me, won’t you?