Derpity Derp

I’m almost done with a week that’s been a real mixed bag. Saw the Doctor and made some good progress with things. However,  this was possible because I got called off the first day of my work week.  The following one was a half day due to it being unbelievably dead on the beach.  So my money is not great right now.  I’m confident things will pick up,  just got to be patient.  

One more day on the beach and I hit my weekend.  Talked to my boss about having a dedicated day off for Methotrexate hangover.  I’ll take it Tuesday night and ride out the next day on the couch.  He was cool about it as I very scarcely work on Wednesdays as is. The people I work for are pretty reasonable.  I was hoping to have moved on to something other than hospitality by now but I do have a nice little existence at my beach job. 

I had been  (and still am) a bit nervous about this treatment.  It’s a chemotherapy drug used in low doses to treat RA and as such can be a bit rough.  I finally got more cozy with the idea during my most recent flare. My first real flare, to be honest.  I wasn’t sure the diagnosis was correct until this one. 

I’ve had polyarthritis (multiple swollen joints ) before but it was always relatively mild. Usually I get sore for a day or two,  let it pass or vanquish it with a tiny burst of prednisone.  In the last week or two the pain was a good bit more intense than I was used to.  I started what was supposed to be a tiny round of it and 8 days later I was being seen by the doctor  on the fly still on prednisone and getting two injections in my caboose.  He was going to just run with Humira but I asked him about methotrexate. I didn’t want to replace Arava with nothing. 

Initially he was hesitant to prescribe it as we thought I had rheumatoid nodules on my knuckles but it turns out they are something far less serious. Garrod’s Nodes, also known as knuckle pads.  At least according to the biopsy. I told him that I read that methotrexate can get you better results out of biologics and he said ‘Well this is true, is that what you feel like doing? ‘ I answered in the affirmative and he sent me on my way after my shots.

Point of all this is,  while I pretty much trusted the analysis of my physician it didn’t really feel real until now. Up to this point I thought I was a fairly easy case to handle.  It’s under control but this is all I can keep thinking to myself :

This is more serious business than I realized.  When I was diagnosed I had lots of swollen joints but pain was very mild and I’d have long periods of being relatively asymptomatic so I always quietly wondered if this was really that big a deal.  No longer. 

I’m on the couch relaxing at present.  One more day to power through and I can get my chill on. Until the first dose of methotrexate,  which is looming on the horizon. I really hope it helps.  If you can put up with it it’s the gold standard for RA. 

Soon my darling will arise from his slumber and make me a fabulous dinner. I am excite.  Also, my Electric Wizard patch arrived today! I am really looking forward to posting pics of the jacket as it takes form. Assuming my hands cooperate, that’s always the big unknown. 

So yeah,  a mixed bag. Got a lot done, but my check for this week shall suck and I’m still trying to shake off the last of this flare.. Oh well. Can’t win ’em all. 

I still feel good, and that’s enough for now.  

Au revior,

Thom 

Maintenance Day Part Deux

Things changed not ten minutes after I finalized my last blog post.  I had been in a state of frustration trying to get the Doctor’s office on the phone about a sooner appointment.  Noone would answer,  or I would get lost in the phone system ad nauseum.  Long story short,  my luck improved and the phone got answered. 

I was hoping to wrangle something in the next week or two, at the very least we can do better than February,  ja? Indeed.  I was able to get seen TODAY. This absolutely blew my mind,  given how things usually play out. An hour later and I was on the 76 headed to North Clearwater.  

I had to wait a while as it looked like the place was pretty slammed today and understaffed as well.  Wasn’t that long, though.  The doctor came in and actually proceeded to talk to me about Depeche Mode for the first couple minutes as that was the shirt I happened to be wearing.  That said,  he got to the point quickly.  We talked a bit about what the last week or so was like for me.  We agreed that the Arava wasn’t doing jack and could go. He seems pretty confident that Humira will cover most of my needs in time, but went ahead and put me on methotrexate.  The human body has a habit of developing antibodies to biologics.  I mentioned this and he said this is true and should help with this. 

Aside from that,  he had his nurse give me a pair of injections.  A steroid and an Anti-inflammatory.  Already feeling a bit better for it.  In the space of fifteen minutes I accomplished my rheumatological goals for the next few months.  I can actually relax for a while and let the meds do their work. 

Not much else is happening.  Going to work in the morning and hoping all this medical bull gives me some peace. I don’t mean to sound like a bitch. Medical science has done me alright and I have no gripes. 

I mean, I have some. I just don’t feel like they’re worth chasing. 

I’m already feeling a lot better than the last few days leading up to this.  Time to keep the momentum going 🙂

My Darling Man sleeps and I’m letting him sleep. He’s so wonderful it kills me. We’re a couple of chronically ill homos that are hopelessly in love and showing no sign of letting up. It’s so unusual being with someone who actually brings out the best parts of me. 

That’s what love is.  A couple of wounded souls helping one another.  No chains or obligations. Just you and I. Ad infinitum.  

I don’t know where I’m going with this and I don’t give a toss.  I’m content and that’s enough for now. 
Adieu. 

-T