An unexpected maintenence day

Normally I’d be riding the beach trolley to work right now.  However,  my boss called me at eight AM and told me that I  could take the day off. This is equal parts blessing and curse. I’ve been hurting pretty good lately and haven’t been able to stay off the prednisone or ibuprofen so while I love having a break I still need to support my damn self. 

I’m a bit annoyed that I won’t make any  $ today, but I do appreciate having a day off to do my Humira injection which will hopefully cover me this weekend and there on. I remembered to let the pen warm up today, so it didn’t hurt nearly as much as the last injection. I seem to remember that the relief began after shot number two. As this is the second shot since I started back up I’m hoping that it does it’s thing soon. The prednisone has been helping but isn’t a long term solution as it can mess with bone density and important stuff like that.  I’m down to 5mg a day and hoping to put it away for a while after I get through this latest episode.  I wanted to make money today but frankly I’m still pretty sore from last week. The joint swelling is becoming more pronounced and the pain is worse than usual.  The steroid is helping but I think my body is getting used to the dose I’m on. I’m also very reluctant to raise it as that’s where most of the issues start occurring. 

Not sure what to do with this day. Trying to find the balance between productive and chillaxing. I have a mess of pills to organize as well as plenty of house work to knock out. Honestly though I’ve been fighting some creeping inertia this week.  

Anyhow, time to catch up on muh life a bit.  Maybe squeeze a bit of rest in there too. No promises 😉

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Everything in time.

I’m trying to exercise some patience and be more receptive to change. Part of my therapy is trying to break out of old patterns and identify bad habits. I’m thinking a little extra proofreading is in order for this post as this is my first time using the voice feature to blog. I’m trying to get myself what break I can in my off time. Prednisone is helping with the swelling joints but now I’ve entered night time and the steroid is starting to wear off. Gentle little prickles of pain are becoming gradually more noticeable. I thought of taking the steroid in the afternoon or something but I have to sleep at some point, right?

This voice blogging is kind of weird but not terrible. Actually I rather like it now that I’m starting to get used to it. However punctuation and things like that are a little more Awkward. I’ll go through this later and see what I missed to be sure.

I’m in the process of wrangling myself a sooner appointment with my rheumatologist. I don’t believe the Arava which I’ve taken for several months is doing me any good. My guess is the next thing to try is methotrexate but my doctor may have something else strange up his sleeve. We shall see I guess. I’ll probably start getting some relief soon as I have another Humira shot on Friday. If it’s anything like what it was before I stopped using it I’ll be in good shape.

Work goes well but I’m worried about how long I’ll be able to stand up to the physical nature of my job. I know my inflammation will only get worse as the cold gets more intense. At least that’s how it happened last year. On the other hand I wasn’t on DMARDS last year. 

Anyhow,  gearing up for Christmas and immediately regretting jumping back to typing this post on my android.  Thinking a bath with some Epsom salt is in order.  I want off the prednisone but right now I’m thinking that I should keep it up until I get seen again. Pls Pray for Thom.  

In spite of pain and stuff it’s been a wonderful day.  My man got me strawberry pancakes this morning and the rest of the day was quite pleasant.  

Be well-

Thom 

The Humiradventure Continues….

I’m still figuring it out as I go. Such is the way with most things.  I’ve received a denial letter, but the specialty pharmacy has already filed an appeal on my behalf.  I’m three injections in and feeling pretty good day to day.  I’ve only taken pain relievers ONCE in the last two weeks.  I’ve noticed a fairly sharp drop in my morning stiffness and have been relatively comfortable of late. I likey the Humira.  

Granted,  some of it could be the Arava starting to do it’s job.  Whatever it is,  I’ll take it. I’ve had a steady decline in the swelling of my joints and my energy level has been much better for the last few weeks.  I can see why so many Rheumatologists extol the virtues of DMARD combination therapy.  The shit freaking works.  I’ve been in much better shape on a daily basis and I’ve been able to get there without ibuprofen OR prednisone.  

So yeah,  that’s about where I’m at.  As confusing as things have been with navigating this strange world of specialty pharmacies,  I’ve been fortunate to have a Nurse from AbbVie in my corner advising me.  She called me yesterday and I gave her the scoop on the latest happenings. She told me to keep up what I’m doing and then she said ‘If your insurance company ends up bringing down the hammer give me a call and we can get the paperwork for another option started’. It’s a very crude paraphrase but the point is that AbbVie has some kind of foundation that may be able to help me. We shall see,  but I’m pretty optimistic about things. 

I must admit I feel pretty fortunate.  I just said to my Boyfriend on the other couch “The best thing about the meds is that I’m not flaring up at work. I can just do my job.”.I’m trying to work smarter lately and reduce the stress in my life.  Getting away from Facebook was a good move. It wasn’t any particular factor aside from it just being too much bullshit for my mind to effectively process.  I don’t check my blog at work. I’ll see it if I get a like or a new subscriber and that’s the extent of my wordpress play at work. My battery lasts a lot longer these days as well.  

All things analyzed, I’m pretty content with how my existence is currently rolling along.  I’m confident that my jacket project will chug along with my hands being in better order. I got some killer patches for it but I’ve barely etched the surface of it’s potential.  Black and white.  Occult Metal and Psychedelic Rock. Thelema. Spikes. It is going to be an outpouring of my feral soul. More on that as it develops. 

Anyhow,  life is capricious and strange as ever. Ride the waves we must!!!

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