Promoting and Whoring

Is kinda my MO lately. Amazingly enough,  my Gofundme page netted some decent funds on the first day. Apparently a lot of people care about me, one donation was from an ex who I haven’t seen in over a decade.  So yeah,  happy with it so far but still a long way to the 2000$ goal. Here’s the link again, anything is always profusely appreciated. 

https://www.gofundme.com/help-thom-pay-his-hospital-bills
Regards –

Thom 

Berserk Jacket of Doom

I’m done messing with it. I used my post Hospital time (in spite of the percocet making me lazy)to get my shit together and do the last of the sewing.   Stay tuned for the beginnings of a Strictly Thrash Vest. Until then, here’s muh pride and joy :

Bands: Absu, Jex Thoth,  The Devil’s Blood, Purson, Mayhem, King Diamond, Abyssic Hate, Immolation, Pungent Stench, Incantation, Mortuary Drape, Blood Ceremony, Electric Wizard, Samael, Burzum, At The Gates, Funeral Mist, Misfits, Morbid Angel, Averse Sefira, Sadistic Intent, Bathory, Angelcorpse, Beherit, Black Sabbath,  Arghoslent.  

Cheers y’all! 

-Thom

My Christmas Present to myselfย 

I finally printed and framed my two best Concert Photos,


 On the left: With Harald Oimoen from DRI last December. 

On the right : With George Fisher at a Paths of Possession Show in December of 2005.

It’s not a big present for me, but I like it ๐Ÿ™‚

Have yourselves a Happy Holidays!

-Thom

Well Ho, Ho, Ho!

I’m in a pretty pleasant mood right now.  Not long ago I got off the phone with CVS Caremark Specialty Pharmacy.  Seems that my Prior Authorization paperwork  for Humira has been officially approved.  I’ve gotten everything set up with shipping and should have my first shipment Tuesday afternoon. So yeah,  happy dance and whatnot. 

I’m feeling a bit more relaxed about Christmas and my lack of much shopping ability this year. I’m going to do something for the ones I love, it just may be a bit basic. Anyhow,  getting the business with Humira sorted out is a major load off my mind.  I’m trying to STFU, chill and enjoy the season and one of my major stressors is now all good. 

Not much else is happening,  having a bit of inflammation still as I’m only on a starting dose of methotrexate and haven’t gotten to the therapeutic range yet. Doing much better still than I was a few weeks ago.  I’m staying off the prednisone and haven’t had any in two weeks. 

Not much else to report,  except that I may have something up my sleeve writing-wise. 

We shall see. 

Be well –

Thom 

Trexin’ along

I’m feeling a bit rough but not terrible considering the fact that I’m T+16 hours from my first weekly dose of methotrexate. I’m trying to stay conscious of how low my dose is, because it could be more harsh as one gets higher in the range.  But yeah,  I’ve been riding it out on the couch and taking it easy. I’ve had some heavy fatigue and mild queasiness but nothing like all the hype I’ve heard surrounding this treatment. Aside from an icky sweaty night I feel mostly alright.

Part of this was a strategy on my Doctor’s part. He resubmitted my Humira prescription after I  added Arava and Plaquenil to my list of failed drugs. The main reason it was initially denied was the lack of having tried other things. I’m hoping the nice people at Prime Therapeutics see it his way this time. Everything I’ve read says that the most effective combination for fighting RA is a synthetic DMARD plus a biologic. 

Anyhow,  I’m happy to say that at least for now the big bad methotrexate isn’t such a big deal.  This may change,  but it’s totally workable for the time being. As long as I stay diligent with the folic acid the side effects should be relatively mild. Really,  it’s nothing a bit of medicinal THC can’t handle. Hopefully now I can stay the hell off the damned steroids for a while. They take care of the swelling very well but cause trouble of their own. 

I’m done with Facebook permanently,  of this I am certain.  However I still use one social media network,  albeit a much smaller one than FB or Twitter and what have you. It’s called MyRATeam. The social network for people with Rheumatoid Arthritis.  I’m not as active as some but I find it an excellent resource for information about treatment options as well as a fun place to interact with others. All I was really doing on Facebook was messing around in groups pertaining to my health issues anyway. I just decided to cut the excess bullshit away and keep what I wanted. Between here (WordPress ) and myrateam.com my itch to socialize online it pretty well covered.

So in all, I’m feeling quite optimistic about the current course of action and looking fondly to the future. In an hour or so I’ll be doing breakfast with my darling Lover and there’s no telling what the day holds in store. 

That’s all for now. 

-Thom 

Derpity Derp

I’m almost done with a week that’s been a real mixed bag. Saw the Doctor and made some good progress with things. However,  this was possible because I got called off the first day of my work week.  The following one was a half day due to it being unbelievably dead on the beach.  So my money is not great right now.  I’m confident things will pick up,  just got to be patient.  

One more day on the beach and I hit my weekend.  Talked to my boss about having a dedicated day off for Methotrexate hangover.  I’ll take it Tuesday night and ride out the next day on the couch.  He was cool about it as I very scarcely work on Wednesdays as is. The people I work for are pretty reasonable.  I was hoping to have moved on to something other than hospitality by now but I do have a nice little existence at my beach job. 

I had been  (and still am) a bit nervous about this treatment.  It’s a chemotherapy drug used in low doses to treat RA and as such can be a bit rough.  I finally got more cozy with the idea during my most recent flare. My first real flare, to be honest.  I wasn’t sure the diagnosis was correct until this one. 

I’ve had polyarthritis (multiple swollen joints ) before but it was always relatively mild. Usually I get sore for a day or two,  let it pass or vanquish it with a tiny burst of prednisone.  In the last week or two the pain was a good bit more intense than I was used to.  I started what was supposed to be a tiny round of it and 8 days later I was being seen by the doctor  on the fly still on prednisone and getting two injections in my caboose.  He was going to just run with Humira but I asked him about methotrexate. I didn’t want to replace Arava with nothing. 

Initially he was hesitant to prescribe it as we thought I had rheumatoid nodules on my knuckles but it turns out they are something far less serious. Garrod’s Nodes, also known as knuckle pads.  At least according to the biopsy. I told him that I read that methotrexate can get you better results out of biologics and he said ‘Well this is true, is that what you feel like doing? ‘ I answered in the affirmative and he sent me on my way after my shots.

Point of all this is,  while I pretty much trusted the analysis of my physician it didn’t really feel real until now. Up to this point I thought I was a fairly easy case to handle.  It’s under control but this is all I can keep thinking to myself :

This is more serious business than I realized.  When I was diagnosed I had lots of swollen joints but pain was very mild and I’d have long periods of being relatively asymptomatic so I always quietly wondered if this was really that big a deal.  No longer. 

I’m on the couch relaxing at present.  One more day to power through and I can get my chill on. Until the first dose of methotrexate,  which is looming on the horizon. I really hope it helps.  If you can put up with it it’s the gold standard for RA. 

Soon my darling will arise from his slumber and make me a fabulous dinner. I am excite.  Also, my Electric Wizard patch arrived today! I am really looking forward to posting pics of the jacket as it takes form. Assuming my hands cooperate, that’s always the big unknown. 

So yeah,  a mixed bag. Got a lot done, but my check for this week shall suck and I’m still trying to shake off the last of this flare.. Oh well. Can’t win ’em all. 

I still feel good, and that’s enough for now.  

Au revior,

Thom 

Maintenance Day Part Deux

Things changed not ten minutes after I finalized my last blog post.  I had been in a state of frustration trying to get the Doctor’s office on the phone about a sooner appointment.  Noone would answer,  or I would get lost in the phone system ad nauseum.  Long story short,  my luck improved and the phone got answered. 

I was hoping to wrangle something in the next week or two, at the very least we can do better than February,  ja? Indeed.  I was able to get seen TODAY. This absolutely blew my mind,  given how things usually play out. An hour later and I was on the 76 headed to North Clearwater.  

I had to wait a while as it looked like the place was pretty slammed today and understaffed as well.  Wasn’t that long, though.  The doctor came in and actually proceeded to talk to me about Depeche Mode for the first couple minutes as that was the shirt I happened to be wearing.  That said,  he got to the point quickly.  We talked a bit about what the last week or so was like for me.  We agreed that the Arava wasn’t doing jack and could go. He seems pretty confident that Humira will cover most of my needs in time, but went ahead and put me on methotrexate.  The human body has a habit of developing antibodies to biologics.  I mentioned this and he said this is true and should help with this. 

Aside from that,  he had his nurse give me a pair of injections.  A steroid and an Anti-inflammatory.  Already feeling a bit better for it.  In the space of fifteen minutes I accomplished my rheumatological goals for the next few months.  I can actually relax for a while and let the meds do their work. 

Not much else is happening.  Going to work in the morning and hoping all this medical bull gives me some peace. I don’t mean to sound like a bitch. Medical science has done me alright and I have no gripes. 

I mean, I have some. I just don’t feel like they’re worth chasing. 

I’m already feeling a lot better than the last few days leading up to this.  Time to keep the momentum going ๐Ÿ™‚

My Darling Man sleeps and I’m letting him sleep. He’s so wonderful it kills me. We’re a couple of chronically ill homos that are hopelessly in love and showing no sign of letting up. It’s so unusual being with someone who actually brings out the best parts of me. 

That’s what love is.  A couple of wounded souls helping one another.  No chains or obligations. Just you and I. Ad infinitum.  

I don’t know where I’m going with this and I don’t give a toss.  I’m content and that’s enough for now. 
Adieu. 

-T

An unexpected maintenence day

Normally I’d be riding the beach trolley to work right now.  However,  my boss called me at eight AM and told me that I  could take the day off. This is equal parts blessing and curse. I’ve been hurting pretty good lately and haven’t been able to stay off the prednisone or ibuprofen so while I love having a break I still need to support my damn self. 

I’m a bit annoyed that I won’t make any  $ today, but I do appreciate having a day off to do my Humira injection which will hopefully cover me this weekend and there on. I remembered to let the pen warm up today, so it didn’t hurt nearly as much as the last injection. I seem to remember that the relief began after shot number two. As this is the second shot since I started back up I’m hoping that it does it’s thing soon. The prednisone has been helping but isn’t a long term solution as it can mess with bone density and important stuff like that.  I’m down to 5mg a day and hoping to put it away for a while after I get through this latest episode.  I wanted to make money today but frankly I’m still pretty sore from last week. The joint swelling is becoming more pronounced and the pain is worse than usual.  The steroid is helping but I think my body is getting used to the dose I’m on. I’m also very reluctant to raise it as that’s where most of the issues start occurring. 

Not sure what to do with this day. Trying to find the balance between productive and chillaxing. I have a mess of pills to organize as well as plenty of house work to knock out. Honestly though I’ve been fighting some creeping inertia this week.  

Anyhow, time to catch up on muh life a bit.  Maybe squeeze a bit of rest in there too. No promises ๐Ÿ˜‰