Is honestly pretty strong lately. I had a period where I was kind of getting sucked into the old blacker than death pit of despair. It’s not as easy to do as it once was, but I stay vigilant nonetheless because I fully realize what I’m screwing with. I am really trying to be good to myself here and not let it get away from me again.
Mentally, I’m in a pretty excellent place. One of optimism and hope. I’m staying positive and taking decent care of myself as far as staying up on all my meds and eating right. Haven’t eliminated gluten but have significantly cut back on it and I’m pretty sure it’s the reason my belly is tightening up. I do need to start using the elliptical again, it’s pretty much the perfect workout for me. Soon, honest.
Still having a fair amount of swollen joints so my Doctor got me started with Humira injections yesterday. It’s pretty easy to do and doesn’t hurt much at all, at least so far. My Doctor has said if the DMARD meds do their thing I should be able to cut out ibuprofen which can spike my blood pressure. I didn’t really feel any different yesterday after the shot in my thigh. Woke up feeling rather strange the morning after but not particularly sick. Just really weird like.
So yeah, things are sort of in a state of flux, but for the best methinks. I’m grateful to be treating my RA with some proper meds and things have been lovely as ever on the home front. I’m chilling on the couch with my bestie Ms. Roxy at the moment, as I so frequently do.
The only thing I find myself worried about now is getting sick. I’ve been warned that if I’m sick on Humira day I should skip it. Honestly the potential effects for this one are pretty scary but I decided to give it a try because my Doctor said it would be cheaper than methotrexate and most likely have better results. At least after everything processes with the patient assistance program he signed me up for. If not for this I doubt we would have considered a biologic as they are hideously expensive generally. As far as the getting sick thing, allow me to clarify. I’m not being a hypochondriac or looking for something to go wrong, I’m just being realistic about the fact of being on two Immunosuppressives. Aside from paranoid handwashing I’m just going to start packing sani-gel and try to avoid the bus. I see a lot of cycling in my future. Could be a good thing though, in fact I’m sure of it.
On that note, I feel compelled to mention that my better half and my family are being really awesome and supportive about this whole business.
That’s why it kind of pisses me off when I hear people go on their rants about big pharma or their conspiracy theories about medical science. I’m not saying that there isn’t profiteering and shit like that going on, not by any stretch. It’s just that there are a lot of good health professionals out there who bust their asses to help their patients. I’m grateful as hell to have an excellent care team. I feel it’s a pretty dick move when people try to tell folks with chronic illnesses that they know better than our physicians. I grow tired of people and their belief that there is some organized effort by big pharma to slaughter the population. I have three Physicians who look out for my various health issues and I’m grateful for each of them.
Proper diet, exercise, probiotics, these are great things that I include as part of my routine. But early aggressive treatment is how you prevent irreversible joint damage. I have seen photos of advanced Rheumatoid Arthritis. I do not feel like taking my chances. I have a dear friend who is trying to convince me that medical science is out to murder me and that a person at a health food store can cure my Rheumatoid Arthritis and Bipolar Disorder with the right combination of herbs and supplements. I’m not buying it, to be perfectly frank. I know of a person who was a good friend of my sister who’s acupuncturist convinced him to stop taking his psych drugs. Two weeks later he blew his brains out with a shotgun. I think I’ll stay on the meds.
Aside from that, I’m also thoroughly sickened by the election. Both parties giving me shit for voting Libertarian and assuming that they own my vote. They can both kiss my ass. I don’t want more of the same. I will vote however I damn well please and you can all live with it.
So yeah, that’s about where I’m at. I hope you enjoyed my hopelessly disjointed thoughts.