Adventures in boredomΒ 

Or as you might guess,  not so much.  I’ve had more time than I know what to do with lately and I’m going more than a bit crazy with the insane balancing act known as la vie. This is not to say that I’m going four alarm batshit and making prophecies of a great plague or something like THAT.  Just on edge. The Gofundme helped a lot but the business with my foot is taking longer than I would like to heal. It’s made great progress,  it’s just not there yet and I’m frustrated significantly of late. 

The news is not all frustration. I did my blasted taxes today and am getting almost a thousand dollars back this year. That I can live with πŸ™‚ 

I’m still worried about a great many things but trying to be *gasp* more flexible at handling the various wild pitches life likes to throw into the mix. If I’ve learned anything from my Occult studies, it’s that a greater degree of self mastery is required to truly grow.

What else can I tell you?  I’m far along with the healing process that the Doctor said that I could go back on Humira and Methotrexate,  both of which I began again on Monday.  Little early to expect any relief,  but I seem to remember that at least the Humira is pretty fast acting so let’s hope. Happy to be off those ibuprofen horse pills which didn’t do jack for my joint pain and spiked my blood pressure. Trying to ease off prednisone,  today is my first day without it but I’ve been keeping the dose quite low. 

Not a whole lot else is really going on.  Shannon’s Mom is staying with us for a few weeks so that should be good fun. Been enjoying lots of bonding time with my animals as well as lots of musical exploration. Particularly with my vinyl. I’m planning to take my Mom up on her offer to teach me to crochet.  That’s about all for now.  

Be well-

Thom 

Derpity Derp

I’m almost done with a week that’s been a real mixed bag. Saw the Doctor and made some good progress with things. However,  this was possible because I got called off the first day of my work week.  The following one was a half day due to it being unbelievably dead on the beach.  So my money is not great right now.  I’m confident things will pick up,  just got to be patient.  

One more day on the beach and I hit my weekend.  Talked to my boss about having a dedicated day off for Methotrexate hangover.  I’ll take it Tuesday night and ride out the next day on the couch.  He was cool about it as I very scarcely work on Wednesdays as is. The people I work for are pretty reasonable.  I was hoping to have moved on to something other than hospitality by now but I do have a nice little existence at my beach job. 

I had been  (and still am) a bit nervous about this treatment.  It’s a chemotherapy drug used in low doses to treat RA and as such can be a bit rough.  I finally got more cozy with the idea during my most recent flare. My first real flare, to be honest.  I wasn’t sure the diagnosis was correct until this one. 

I’ve had polyarthritis (multiple swollen joints ) before but it was always relatively mild. Usually I get sore for a day or two,  let it pass or vanquish it with a tiny burst of prednisone.  In the last week or two the pain was a good bit more intense than I was used to.  I started what was supposed to be a tiny round of it and 8 days later I was being seen by the doctor  on the fly still on prednisone and getting two injections in my caboose.  He was going to just run with Humira but I asked him about methotrexate. I didn’t want to replace Arava with nothing. 

Initially he was hesitant to prescribe it as we thought I had rheumatoid nodules on my knuckles but it turns out they are something far less serious. Garrod’s Nodes, also known as knuckle pads.  At least according to the biopsy. I told him that I read that methotrexate can get you better results out of biologics and he said ‘Well this is true, is that what you feel like doing? ‘ I answered in the affirmative and he sent me on my way after my shots.

Point of all this is,  while I pretty much trusted the analysis of my physician it didn’t really feel real until now. Up to this point I thought I was a fairly easy case to handle.  It’s under control but this is all I can keep thinking to myself :

This is more serious business than I realized.  When I was diagnosed I had lots of swollen joints but pain was very mild and I’d have long periods of being relatively asymptomatic so I always quietly wondered if this was really that big a deal.  No longer. 

I’m on the couch relaxing at present.  One more day to power through and I can get my chill on. Until the first dose of methotrexate,  which is looming on the horizon. I really hope it helps.  If you can put up with it it’s the gold standard for RA. 

Soon my darling will arise from his slumber and make me a fabulous dinner. I am excite.  Also, my Electric Wizard patch arrived today! I am really looking forward to posting pics of the jacket as it takes form. Assuming my hands cooperate, that’s always the big unknown. 

So yeah,  a mixed bag. Got a lot done, but my check for this week shall suck and I’m still trying to shake off the last of this flare.. Oh well. Can’t win ’em all. 

I still feel good, and that’s enough for now.  

Au revior,

Thom 

Everything in time.

I’m trying to exercise some patience and be more receptive to change. Part of my therapy is trying to break out of old patterns and identify bad habits. I’m thinking a little extra proofreading is in order for this post as this is my first time using the voice feature to blog. I’m trying to get myself what break I can in my off time. Prednisone is helping with the swelling joints but now I’ve entered night time and the steroid is starting to wear off. Gentle little prickles of pain are becoming gradually more noticeable. I thought of taking the steroid in the afternoon or something but I have to sleep at some point, right?

This voice blogging is kind of weird but not terrible. Actually I rather like it now that I’m starting to get used to it. However punctuation and things like that are a little more Awkward. I’ll go through this later and see what I missed to be sure.

I’m in the process of wrangling myself a sooner appointment with my rheumatologist. I don’t believe the Arava which I’ve taken for several months is doing me any good. My guess is the next thing to try is methotrexate but my doctor may have something else strange up his sleeve. We shall see I guess. I’ll probably start getting some relief soon as I have another Humira shot on Friday. If it’s anything like what it was before I stopped using it I’ll be in good shape.

Work goes well but I’m worried about how long I’ll be able to stand up to the physical nature of my job. I know my inflammation will only get worse as the cold gets more intense. At least that’s how it happened last year. On the other hand I wasn’t on DMARDS last year. 

Anyhow,  gearing up for Christmas and immediately regretting jumping back to typing this post on my android.  Thinking a bath with some Epsom salt is in order.  I want off the prednisone but right now I’m thinking that I should keep it up until I get seen again. Pls Pray for Thom.  

In spite of pain and stuff it’s been a wonderful day.  My man got me strawberry pancakes this morning and the rest of the day was quite pleasant.  

Be well-

Thom 

Le ouch

One more day of my work week remains in my way. It’s actually fortunate that it’s been kind of a slow week because I’ve been hurting pretty good lately. I gave myself a round of Humira last night but haven’t started feeling it yet. Tapering down on prednisone starting tomorrow,  I hope. It all depends on how I feel tomorrow morning.

  I like my job and want the place to make money but I’m so grateful I didn’t have to wrestle with any kegs today. I’m a reasonably strong and fit person,  which can be sort of a problem.  I tend to get so into doing stuff and adrenaline that I forget that I have an autoimmune disease and need to pace myself a bit.  Like with stocking the bar at work, I’ve started taking more trips with lighter loads. I’ve always been about maximum efficiency but I’m just trying to think about the long haul as opposed to the moment.  If you don’t give yourself a break no one else will. 

I’m at home now, having just finished the third of a four morning stretch on the beach. My feet are sore, my metacarpals are throbbing but I’m on the couch and my mood is pleasant. My Darling is making dinner and I’m enjoying muh blogging.

I’m trying to be patient with the Humira.  I’m sure my levels dropped somewhat  from missing a round ten days ago. I seem to remember starting to notice an effect within the first week and definitely after the second injection. 

The cool thing about this next week is that I’ll have my Mom’s car while she’s visiting my Sister. Looking forward to a date night with my dearest. I have a few more patches in the mail for the jacket project and I hope to get moving on it soon. At least as quickly as my hands will allow.  Sewing doesn’t generally give me much pain as long as I don’t overdo it. I’m just ecstatic that I have a project πŸ™‚

So yeah,  I’m pretty sore but in a fairly excellent mood. That’ll do.  Small victories and all.

-T