Through dark waters

I suppose that isn’t the most uplifting title, but such are the times and trials of late.  I’m on my feet and still fighting. I’m trying to not just bitch incessantly about things as all that really achieves is getting me MORE worked up. So that said I haven’t had the best of times lately. 
My RA is about as well controlled as I can hope for right now. The methotrexate is rough but pretty good at controlling my symptoms. Since I started this higher dose I’ve almost completely removed prednisone from my daily meds. I’ve done two three day bursts in the last month and a half which is not very much at all so naturally I’m happy about that.  I’m fairly certain that my bussing and barbacking days are nearly over. It’s just too damn much physical strain. I can’t keep up with it like I used to and I’m killing myself trying. Going to give serving a try as well as explore a few other things. 

So yeah, RA is currently alright. Bipolar disorder issues, not so much. I’m not having any mania or anything like that. I just frequently get really sad. Lately my phone just doesn’t ring, no-one comes over and I can’t find anyone to talk to or hang out with me and it’s kind of eating at me. I’m doing my best to be my own best friend here. Having the animals here helps, but I’m still getting pretty stir crazy being by myself all day everyday. 

Not badly depressed. Just frequently sad and lonely and morose. Agitated because I don’t know what to do with myself. I have to figure something out, I’m home alone for another four weeks. 

I got so bored I even set up an Instagram account. That one shocked even me. I don’t have many good pictures but perhaps I can start taking some. It’s just more internet crap to amuse myself with. Whatevers.

I don’t mean to make it sound like things are terrible. I’m just starved for the little things. Someone to hold me together when I fall apart, that sort of thing. I’ve been laying on our sofa a lot because if you lay against the back it kind of feels like someone spooning with you. 

I’m just doing my best to be there for myself and trying to properly maintain. I shouldn’t be counting the days but I totally am, of course. Here’s hoping for a better tomorrow.
Delicately yours,

Thom

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Of malaise and persistence…

Things have been rougher than usual the last month. As  I compose this post  I find myself back in a state of relative peace. I’ve only regained my footing in the last five days. The Iron Maiden show gave me a much needed boost as the three weeks leading up to it were pure depressive hell.

I was fine at , say my job. That kept me plenty busy. It’s just the down time that’s been eating at me. I never know what in the hell to do with myself. I mean, I haven’t become a total house ape. I go for a good long bicycle ride fairly regularly and try to get out and do stuff with friends. It is difficult though with so many conflicting schedules and whatnot.

RA-wise  I’m continuing a trend for the better. I’ve been off the steroids for over two weeks and  I’m trying to keep it up. Since the methotrexate was raised I’ve noticed a reduction in  symptoms overall. Which is damn good because taking the stuff is harsh enough that I’d really feel cheated if it weren’t freaking effective. It plus the Enbrel seems like a pretty potent combination.  Last injection was a real Bear though. I think  I went too deep and muscled it. Most painful shot I’ve ever given myself. I started growl-screaming halfway through. My leg was sore at work all day 😦

Between RA and being Bipolar it kind of feels like  I never really get to relax. I mean, I shouldn’t make it sound like  I have it that bad. I’m still strong enough to work and  I’m going to try to make something of myself. If only  I could figure out what. I really have no idea what I’d be good at. Anyhow, the meds are doing me pretty well at present. The steroids were really throwing me off kilter for a while and  I’m happy to be off of them. 

Two days from today will make a month my Lover has been gone. Also, another month until he returns so yay for halfway there.I was hysterically depressed for the first three weeks but Iron Maiden plus time with my friends helped get my ass back among the living. It was an incredible experience. Obviously lots of tracks from The Book of Souls as it’s TBOS tour but also a ton of classics including:

Wrathchild, Children of the Damned, The Trooper, Powerslave, Fear of the Dark, Iron Maiden,  The Number of The Beast, Blood Brothers and Wasted Years.

Lots of fascinating people watching and my Buddy Justin came with me. His ticket was my birthday gift to him and we had an absolute blast. Went to a Killer Pizza place and had a little pre show meal then it was off to The Amalie Arena to see Metal’s Finest. They were top notch and sounded positively amazing. Pure professionals.

So yeah, I’m hanging in there. Got myself some great memories and my Holy Pilgrimage to see my backpatch band is complete. To anyone who may be reading, all I want for my birthday is an Iron Maiden T-shirt or two (available on the official Iron Maiden website)with North American tour dates on the back as  I was too strapped to buy one at the show 😉

Hey, don’t hate me for trying. I’m just a happy crazy person who just achieved a major Bucket List goal 🙂

That’s about all  I have for now except a photo from the Iron Maiden facebook page. My Buddy Justin and  I are in the upper midsection below the right spotlight. 

Until we meet again,

Thom

Of distance and longing

To say  I’m having a rough time of late would be quite fair. The usual physical and mental troubles plus the fact of my Darling Man being in Alaska for two months. I’m almost two weeks in and my public face is still pretty good, though it has been wearing on me something fierce. I’m going to work, taking care of our Dog and two Cats and just going through the day to day motions. At some point every day when  I’m alone (usually when I get home from work)  I curl up in our bed and start sobbing. It passes quickly enough, but every day without fail since he left.

I’ve been flirting with escapism, wanting to delete this blog, my facebook, my myrateam.com account and I haven’t done so. Why? Because I know it’ll not really accomplish anything outside of worrying people. I realize that a lot of people care about me but when  I get in a depressed state  I just want to shut out everything under and including the Sun. I know that that’s when  I need to reach out and  I’m slowly getting better about this.

Apparently RA can cause or exacerbate depression. I read this and  I’m like ‘Oh joy.’. I have to at this point stress that I am mostly alright, just having a rough go of things. My joint issues have if anything gotten more pronounced in the last year but they haven’t stopped me yet. I am especially fortunate to have discovered myrateam.com , it’s a really good resource for people with RA. It’s nice to have a place where  I can vent among people in the same situation who  can relate and offer insights and or encouragement. 

So yeah, I’m not going anywhere, as this blog is a major stabilizing factor in my life. I’m hanging in there. I’m in the weeds, and  I hurt. Sometimes terribly. I try not to be that flaky person always bitching and moaning about something be it physical or mental. But if this blog was intended for anything it’s precisely this. More than anything it’s for me to help with sorting myself out. I tend to be a person who suffers privately but  I’m trying to get more open with other people about what  I think and feel. Because sometimes people want to help me. What’s more, sometimes I want to let them 😉

I promise to keep doing my best. 93

-Thom