I’m still figuring it out as I go. Such is the way with most things. I’ve received a denial letter, but the specialty pharmacy has already filed an appeal on my behalf. I’m three injections in and feeling pretty good day to day. I’ve only taken pain relievers ONCE in the last two weeks. I’ve noticed a fairly sharp drop in my morning stiffness and have been relatively comfortable of late. I likey the Humira.
Granted, some of it could be the Arava starting to do it’s job. Whatever it is, I’ll take it. I’ve had a steady decline in the swelling of my joints and my energy level has been much better for the last few weeks. I can see why so many Rheumatologists extol the virtues of DMARD combination therapy. The shit freaking works. I’ve been in much better shape on a daily basis and I’ve been able to get there without ibuprofen OR prednisone.
So yeah, that’s about where I’m at. As confusing as things have been with navigating this strange world of specialty pharmacies, I’ve been fortunate to have a Nurse from AbbVie in my corner advising me. She called me yesterday and I gave her the scoop on the latest happenings. She told me to keep up what I’m doing and then she said ‘If your insurance company ends up bringing down the hammer give me a call and we can get the paperwork for another option started’. It’s a very crude paraphrase but the point is that AbbVie has some kind of foundation that may be able to help me. We shall see, but I’m pretty optimistic about things.
I must admit I feel pretty fortunate. I just said to my Boyfriend on the other couch “The best thing about the meds is that I’m not flaring up at work. I can just do my job.”.I’m trying to work smarter lately and reduce the stress in my life. Getting away from Facebook was a good move. It wasn’t any particular factor aside from it just being too much bullshit for my mind to effectively process. I don’t check my blog at work. I’ll see it if I get a like or a new subscriber and that’s the extent of my wordpress play at work. My battery lasts a lot longer these days as well.
All things analyzed, I’m pretty content with how my existence is currently rolling along. I’m confident that my jacket project will chug along with my hands being in better order. I got some killer patches for it but I’ve barely etched the surface of it’s potential. Black and white. Occult Metal and Psychedelic Rock. Thelema. Spikes. It is going to be an outpouring of my feral soul. More on that as it develops.
Anyhow, life is capricious and strange as ever. Ride the waves we must!!!