I can’t think of a more fitting title to my 2019 so far. This is not to say that it’s been an entirely awful time. In many aspects things are beyond excellent. But it’s balanced with things like health issues/chronic pain and strange interpersonal conflicts as well as the world at large collectively tripping from too much junk. No it’s never entirely clear who’s madness is seeping into where or whom.
As for myself, I’m holding but struggling. Blue Cross still hasn’t approved my Orencia and so I’m getting by with prednisone and NSAIDS. Doing my best and honestly the pain isn’t so bad because I have a medical card but… I want a more long term solution to my RA than freaking steroids!!! Prednisone is terrible stuff and really throws your body out of whack! I was hoping to start my infusions before I leave town this week and now… I don’t even know what the hell is happening *sigh*
Yeah, my Man and myself are going to Orlando to do Disney and Universal. We’re really excited and whatnot but we also both have to be careful not to overdo it during that five days. I just switched from Ritalin back to Adderall XR so I should be getting a few more hours of coverage so that’s certainly a plus with my fatigue being what it currently is. That’s the thing about RA, as well as the emotional aspect of the flaring and pain that REALLY grates on Me. The low dose steroid IS helping me but I’m also a basket case. I started getting hysterical two hours after I took the first dose of prednisone a few days ago. I have to accept trading a week of comparatively good mental health for relative relief*(with a price, of course). It almost always turns out to be a deal I wish I hadn’t made.
All this aside, I’m doing my absolute best to be a friend to myself. For so many years I just tore myself to shreds and just felt like I didn’t deserve to be happy. I still get down on myself sometimes but I snap out of it a lot quicker these days because I have a patient and supportive lover who knows how to talk to me and get me to lighten up or just see things from a different perspective. I mean, that, plus starting HRT before Christmas has taken an unbelievable amount of weight off my soul or essence or whatever your brain chooses to describe your being. I mean, I’m still awkward as hell and I get that a lot of people find me really strange but…. As I’ve slowly found my way through my transition I find myself with an unbelievable amount of love and support. Mostly, that is to say.
There’s still my relationship with my Dad which is….not great at this point but…. I know what he thinks of people like me and I don’t give a damn. My relationship with him has never been particularly strong and and I don’t see it improving. He doesn’t approve of how I live and frankly the feeling is mutual and it hurts but…… Whatever. Can’t please everyone.
But it’s alright. I don’t plan to 🤘
Deadnaming doesn’t happen a lot these days, at least socially and at work. Seems to hit me a lot harder when it does. That and vocal dysphoria are what’s really eating at me lately. I really need to get the name change done by my birthday. I need to find a less physically intense job soon and I’m really sick of giving the ‘explaining the duality of my current existence’ speech to potential employers. I know I need to do it but lately from the steroids all I wanna do is freaking cry and my composure has really been taking a hit.
Electrolysis is also high on the list. Perhaps a tracheal shave as well. This ‘in the middle’ stage is proving to be quite the strange trip. It’s good, though. I’m increasingly figuring out who my real friends are 🌷
I got things I need to do (LIKE FIND VOICE LESSONS!!!) now but I’ll have lots of photos and fun Disney stuff soon. Shannon got me some ice packs that wrap around the wrists and I’m gonna make the freaking best of it and enjoy my vacation!!! This dress will hopefully look a lot better after another year or so of estradiol 😂